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Step out to cure scleroderma

— The Scleroderma Foundation / Tri-State, Inc. Chapter will hold its annual Syracuse “Stepping Out to Cure Scleroderma” walk at 10 a.m. June 10 at the Onondaga Lake Parkway in Liverpool.

Walkers can register prior to the event for $20 by going online to walks.sclerodermatristate.org. Day of event walk registration begins at 9 a.m. and is $25 for those 16 and older, $5 for those 5 to 15 and children under 5 are free. All participants receive a T-shirt and awards are given to individuals and teams that raise the most money.

Scleroderma is a chronic, degenerative autoimmune disease characterized by a hardening of the body’s connective tissue. With no known cure, scleroderma is a painful, life altering disease that can be fatal. There are an estimated 300,000 people living with scleroderma in the United States – about 80 percent of which are women, typically diagnosed between the ages of 25 and 55. There are an estimated 30,000 cases of scleroderma in Tri-State Chapter’s New York, New Jersey and Connecticut service area.

The Syracuse walk helps the Scleroderma Foundation / Tri-State, Inc. Chapter build awareness and raise funds for dealing with this devastating disease. Tri-State provides support to help scleroderma patients and their families cope with the disease through support groups, physician and peer referrals and educational forums. The Tri-State Chapter also advocates for and funds medical research aimed at finding new and better treatments and ultimately, a cure for scleroderma.

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