Letters: Join fight against Cystic Fibrosis

To the editor:

On May 21 at the Inner Harbor in Syracuse (it is between Carousel Center and Armory Square and not hard to get to), there is a fundraiser for Cystic Fibrosis. Registration is at 10 a.m. and the walk is at 11 a.m. I am a team captain and I am looking for your help. Please consider joining my team or creating your own. Go to greatstrides.cff.org or cff.org to find more information. It is very easy to navigate. Look for Janet Fagal or Caden's Buddies in Central New York. You can donate online, too, or mail in a check or send one to me. Raising money to fight this disease is what we need to do!

The Great Strides walk is for Caden Custer and all those who suffer from Cystic Fibrosis. They need us and they need a cure! The sooner the better! I hope we can come together to join the effort in finding that cure.

Each day Caden never complains in class and to look at him you would not know he has this life-altering and life-threatening disease. Did you know the lifespan is only 37 years for most patients and that only 45 percent make it into their 30s? Finding out the details is sobering.

Cystic Fibrosis patients take many pills a day (right now our Caden takes 36 every day and sleeps with a vibrating vest all night, every night, to break up the mucous in his lungs, and the disease also affects his digestive system). And yet he is very active and an all-around terrific kid. He never seeks any special attention for his condition. He is a hard-worker and a terrific L.A.K.E.R. at State Street School. Honestly, it breaks my heart to think about this. And Caden is just one of many who suffer from this genetic disease.

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