It is unknown if Scleroderma is hereditary. Research is still needed.
What support organizations exist for those suffering from the disease?
There are support groups set up in many cities to help people deal with the affects of Scleroderma.
You can locate a support group by going to our web-site. The Scleroderma Foundation can provide information and resources, and connect people to one another (through the BUDS program).
We host educational forums at no cost, which provide cutting-edge information regarding research and treatment. Chapter newsletters are also sent to keep people informed and the chapter has an extensive library with many books, audio-tapes, videos and DVDs.
Registration for the walk is underway. On-site registration begins at 9 a.m. Sunday June 8 at the Bayview Tent Area in the Willow Bay area at the north end of Onondaga Lake Park. The walk begins at 10 a.m.
"I have met many people who have lost a loved one to this disease or suffer currently from its devastating effects," Sumner said. "Please help us reach our goal so maybe one day we will find a cure to eradicate this awful disease."
Participants can either make a donation or register to walk. Registration is $15 prior to the June 8 walk (visit scleroderma.org/steppingout/tristate.htm_) or participants can register the day of the event for $20. To make a donation, send contribution to Scleroderma Foundation/Tri-State, Inc. Chapter, 59 Front St., Binghamton, NY 13905. Funds raised go to support the foundations three-fold mission to provide patient support services, fund medical research to develop a cure for Scleroderma and increase public awareness by holding public forums.
For more information, call 1-800-867-0885 or visit scleroderma.org/chapter/tristate.