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Benefit for B'ville boy Saturday

Cole Treasure could use your support.

The second grader at Reynolds Elementary was diagnosed at 2-years-old with type 1 Chiari Disease, which is a serious and rare neurological disorder where the skull separates from the neck causing the bottom brain to crowd the spinal cord.

"This is a very rare and usually misdiagnosed disease," said Sarah Bingham, a home-schooled seventh grade student and friend of the family. "He is very lucky that it was caught as early as it was."

Eventually Treasure, who is now 7-years-old, will have to have surgery to rebuild his skull and spine. It is ideal to have this done when the body stops growing around age 17. The only place in the world where they treat this uncommon disease is located on Long Island.

"The family is lucky they aren't too far away," said Paul Hatch.

Bingham, 13, organized a benefit for Treasure, which will begin at 2 p.m. this Saturday Feb. 23 at The American Legion Post 148 on River Road in Phoenix. Tickets are $15 and include an all-you-can-eat buffet of hot dogs and hamburgers, French fries, baked beans and different kinds of salads.

Hatch, the fundraising chairperson, donated the hot dogs and hamburgers. He and a few other volunteers will be on hand doing a lot of the cooking at the event, which will also feature a cash bar, raffles, 50/50 tickets and entertainment.

Local bands from around the area will be performing including Helo, 4:thirtyseven, Wannabees, Stranger than Fate, The Kerlin Experience and Closer Still. Also performing will be Bingham, a brown belt in karate, and her instructor from Iannuzzos Karate and Kickboxing.

The money raised will go into a trust fund in Cole's name to help accommodate for medical and travel expenses.

Donations can be made to the Cole Treasure trust fund at any Fulton Savings Bank.

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