"Luckily Will and his grandfather Doug have always had a special bond," Cathy said.
As Will and Charlie are not only brothers and twins, but truly best friends. Sibling rivalry is not in their vocabulary. And about the only person who can take Charlie's place for Will is his grandfather, Doug. And that he did.
Charlie and his mom were in Boston waiting for the heart and then after the operation had to stay close to the hospital for two months. He still returns monthly for check ups.
"The hospital staff becomes like family," Cathy said.
About 200 people visited Charlie's care page, which was set up through the hospital. It is an internet site where people can send messages and check the status of a patient.
Healthy twin boys can create a lot of angst for a mom or dad in their activity level alone. Cathy is strong and thankful, but she has also been through the ringer. Charlie helps though, because to him this is all sort of normal. It's just his life, all he knows. He was born with a 'can do' attitude and rolls with it his mom said.
It is also quite evident when you meet him. Charlie likes to lift up his shirt and show off his scars. He likes to run, climb, swing, jump and scooter down the driveway. There is always a shy little smile, sort of like the late Princess Diana's -- all knowing. He likes to take his bike out for a spin and afterwards perform a few tricks, as stand on the seat like Elvis once did on a motorcycle. He listens to music and does crafts and waits for his brother to come home from kindergarten. Then the fun begins.
The two boys miss each other terribly during school time, but in November when Charlie's immune system is stronger he will be able to join his brother.